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A New Strategy aimed at helping adults with Autism to live independently

March 8, 2010 News and Updates

An autism mother from Hampton, Middlesex has helped the Goverment to kick start a new strategy to help adults with Autism through printing giant posters addressed to Gordon Brown

Polly Tommey is the founder of the UK registered Charity The Autism Trust and back in 2009 she launched her own campaign to get the Government to understand that more help is needed for those with an autistic spectrum disorder.   As an autism mother from Hampton, Middlesex herself, she has created this charity to ensure that a future with purpose is established for children everywhere with autism. Their aim is to do this by developing an international network of innovative, high quality environments: Centres of Excellence in Autism.

After having 76 giant ‘Dear Gordon Brown’ posters dotted around the country, Polly finally managed to arrange a meeting with Mr Brown and because of this on the 3rd March 2010, the Government launched a new strategy aimed at helping adults with Autism to live independently.

This is the very first strategy aimed to help adults with autism in England live independently in a society that understands them which was launched by the Care Services Minister, Phil Hope.  With millions of people being affected by Autism in England alone, it’s about time that adults with autism stop being excluded.  The saddening fact is that just 15 per cent of adults with Autism are in paid employment and 49 per cent live at home with their parents.

Below Polly Tommey explains her story on GMTV.

The Department of Health explain that:

“Fulfilling and rewarding lives, the strategy for adults with autism in England, is a foundation for culture change. It will start fundamental change in public services helping adults with autism to find work and live independent lives.”

So, what’s this strategy all about?  The autism strategy is set to ensure that mainstream public sector services support these adults which is backed up by the Autism Act 2009, the first ever condition specific legislation.  The strategy is set to include:

  • A new National Autism Programme Board to lead change in public services set out in the strategy
  • A programme to develop training with health and social care professional bodies – £500,000 investment is also announced today because better recognition and awareness in frontline public services is critical to giving adults with autism the support they need
  • Autism awareness training for all Jobcentre Plus Disability Employment Advisers;
  • Guidance on making public services accessible for adults with autism, like improving buildings, public transport and communication
  • A clear, consistent pathway for diagnosis.

Below are some interesting quotes from the Care Services Minister, the Minister for Disabled People and Director of The Autism Research Centre:

Care Services Minister Phil Hope said:

I want the autism strategy to be the foundation for change in the way our whole society treats adults with autism. They have a huge contribution to make – shutting them out deprives everyone.

‘It is unacceptable that adults with autism are not getting the support they need to live independently and find work. This strategy will start a fundamental change in public services with better awareness and understanding.  It puts more momentum into tackling social exclusion among adults with autism alongside other work, including new NICE clinical guidance and research.’

Jonathan Shaw, Minister for Disabled People, said:

‘We know that work is good for you and we want to give everyone the support they need to get a job and stay in work. Everyone should have the chance to fulfil their potential and build a better life for themselves and their families.

‘We will continue to raise awareness of the specific needs of people with autism amongst Jobcentre Plus staff and test initiatives to help those facing complex barriers to work, such as Project Search which provides internships for people with learning disabilities and autism.’

Professor Declan Murphy, The Institute of Psychiatry, said:

‘I am delighted that this initiative has been undertaken, it clearly demonstrates a ‘joined up commitment’ by the government across a number of relevant departments.  It also demonstrates a clear commitment to improving the lives of adults with autism, and their families.  By doing this the UK is leading the world.’

Professor Simon Baron-Cohen, FBA, Director The Autism Research Centre, Cambridge University, said:

‘The Autism Strategy is a very welcome statement of the Government’s intention to ensure people with autism and their families receive the full support they need and deserve. It highlights in particular how adults with autism spectrum conditions have been invisible, marginalized, and left to suffer in a system they cannot negotiate unaided. Encouragingly, it pinpoints achievable solutions that could radically improve the lives of people with autism. This is an important new development, following on the heels of the historic new Autism Act. The hope is that the Autism Strategy will lead to the identification of desperately needed funding to meet the cost of these essential provisions.’

The Government will publish a first year delivery plan in March 2010, followed by statutory guidance for health and social care by December 2010. The strategy will be reviewed in 2013.

For further information on this strategy please click here.

And for more information on Polly Tommey’s The Autism Trust, please click here and be sure to click on the ‘Buy a Brick’ campaign.

Please see below an informative video created by The Autism Trust.

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